Nonprofit voluntary health organization dedicated to providing patients and their families with information; assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness, and acting as an information source for health care providers. Promotes supports research into causes, treatments, and prevention of the leukodystrophies.
224 North 2nd Street, Suite 2
DeKalb
IL
60115
815-748-3211; 800-728-5483
815-748-0844
Link