Non-profit organization that works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers other written information, videotapes, an annual conference, and other services.
P.O. Box 1586
Longview
TX
75606-1586
903-236-7079; 800-ASAP-282 (272-7282)
903-757-7456
Link